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The research hub for one rare gene
A parent's hand holding a small child's handAn adult braiding a child's hair by a windowA child's hands stacking wooden blocks on a kitchen tableA child's hand reaching for a dandelion in a sunny garden

We fund the research that will treat SLC35A2-CDG, a disease no company is working on.

Hands passing bread across a family breakfast tableA child's hand reaching for a dandelion in a sunny garden

Every euro buys a named result with a date. Written deliverables, a timeline and ownership terms, agreed with every lab before any payment.

A child's hands stacking wooden blocks on a kitchen tableAn adult braiding a child's hair by a window

Started by one family in Helsinki. Built for every child with this gene.

Fewer than 100 cases published · Fifteen families in contact · The first project funded by the founding family